Evidence today, better outcomes tomorrow

Turning data into discovery

CCCure is committed to supporting research which aligns with our dual aims of optimising care now and being instrumental in cure. At CCCure, whilst we undertake significant internal research, we welcome collaboration from others to help advance IBD care.

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As leaders in IBD care and advocacy, CCCure and our collaborators are actively involved in a wide range of research activities to achieve our dual aims of optimising care now and being instrumental in cure.

Peer-Reviewed Publications
  1. Crohn's Colitis Care, a Disease-Specific Electronic Medical Record, Enhances Data Capture in Pediatric Inflammatory Bowel Disease Care (April 2025)
    Joseph L Pipicella, Shoma Dutt, Kunal Thacker, Susan J Connor, Jane M Andrews, Angharad Vernon-Roberts
  2. Proposal and exploration of a novel score to quantify patient-perceived burden of inflammatory bowel disease under routine care (January 2025)
    Joseph L Pipicella, Bonita Gu, Jack McNamara, William Wilson, Lyle J Palmer, Susan J Connor, Jane M Andrews
  3. Benchmarking in inflammatory bowel disease: lessons from Australia and New Zealand (January 2025)
    Peter Litwin & Jane M Andrews
  4. Epidemiology and Treatment Patterns of Fistulizing Crohn’s Disease in a Large, Real-World Australasian Cohort (November 2024)
    Jack McNamara, William Wilson, Joseph L Pipicella, Simon Ghaly, Jakob Begun, Ian C Lawrance, Richard Gearry, Jane M Andrews, Susan J Connor
  5. Co-design of an eHealth clinical management system for children with inflammatory bowel disease: consensus amongst people with inflammatory bowel disease, parents and clinicians (October 2023)
    Joseph L Pipicella, Angharad Vernon‑Roberts, Shoma Dutt, Edward Giles, Andrew S Day, Susan J Connor, Jane M Andrews
  6. The Evolving Role of Technology in Delivering Patientcentric, Empowered Health Care in Inflammatory Bowel Disease: Patient Experience Using Crohn’s Colitis Care e-Health Consumer Platform (July 2023)
    Jack McNamara, Susan J Connor, Jane M Andrews
  7. Integration of mental health and quality of life screening tools in an IBD-specific electronic medical record (Crohn Colitis Care): process and early outcomes (January 2023)
    Taryn Lores, Krupa Krishnaprasad, Susan J Connor, Aura Cabaero, Jane M Andrews
  8. Novel IBD specific electronic medical record allows scalable auditing of IBD severity, therapy and complications to show the current unmet need in IBD care (April 2022)
    Taryn Lores, Krupa Krishnaprasad, Susan J Connor, Aura Cabaero, Jane M Andrews
  9. Assessing effectiveness and patient perceptions of a novel electronic medical record for the management of IBD (August 2021)
    Patricia Kaazan, Tracy Li, Warren Seow, Jana Bednarz, Joseph L Pipicella, Krupa Krishnaprasad, Watson Ng, Astrid-Jane Williams, Susan J Connor, Jane M Andrews
  10. Crohn’s Colitis Care (CCCare): bespoke cloud-based clinical management software for inflammatory bowel disease (November 2020)
    Krupa Krishnaprasad, Alissa Walsh, Jakob Begun, Sally Bell, David Carter, Rachel Graftonh, Alexandra Sechi, Karen Sewell, Anna McMahon, Susan J Connor, Graham Radford-Smith, Jane M Andrews
Selected Abstracts
2025
Congress of European Crohn's and Colitis Organisation (ECCO)
  1. Inflammatory Bowel Disease nursing helpline trends in a large real-world Australasian cohort: Crohn's Colitis Cure (CCC) data insights program
    Patrick Chan, Wai Kin Su, Bill Wilson, Aura Cabaero, Sally Antoniades, Angela Forbes, Kristen Arnold, Rachel Grafton, Jane M Andrews, Susan J Connor
  2. Comparing real-world use of Dietary and Medical Therapies in Children & Adults with IBD
    Megan Barnett, Wai Kin Su, Joseph Pipicella, Hardeep Kaur, Bill Wilson, Susan J Connor, Jane M Andrews
  3. A cross-sectional study of Older Person's IBD across Australasia, Crohn's Colitis Cure Data Insights Program
    Crystal Seng, Wai Kin Su, Bill Wilson, Susan J Connor, Jane M Andrews, Gareth Walker​
  4. The real-world use of intravenous and subcutaneous Vedolizumab in IBD across Australia and New Zealand, Crohn's Colitis cure Data Insight's Program
    Wai Kin Su, Bill Wilson, Gabrielle Wark, Simon Ghaly, Kate Lynch, Ian Lawrance, Gareth Walker, Angela Forbes, Laurel Brett, Yoon-Kyo An, Susan J Connor, Jane M Andrews​
  5. Consistency and Quality of Inflammatory Bowel Disease care in Australasia; towards benchmarking, Crohn's Colitis Cure Data Insight's Program
    Wai Kin Su, Jack McNamara, Bill Wilson, Gabrielle Wark, Kate Lynch, Heidi Su, Angela Forbes, Ian Lawrance, Yoon-Kyo An, Shoma Dutt, Laurel Brett, Gareth Walker, Jane M Andrews, Susan J Connor, Simon Ghaly
  6. Geographic disparities in Healthcare Utilisation in people with Inflammatory Bowel Disease, Crohn's Colitis Cure Data Insights Program
    Wai Kin Su, Bill Wilson, Watson Ng, Heidi Su, Angela Forbes, Gareth Walker, Andrew Kim, Edward Giles, Ian Lawrance, Shoma Dutt, Laurel Brett, Yoon-Kyo An, Kate Lynch, Susan J Connor, Jane M Andrews
  7. Variation in healthcare utilisation amongst IBD care centres in Australia and New Zealand, Crohn's Colitis Care Data Insight's Program
    Wai Kin Su, Bill Wilson, Gabrielle Wark, Gareth Walker, Heidi Su, Angela Forbes, Andrew Kim, Edward Giles, Ian Lawrance, Shoma Dutt, Laurel Brett, Jakob Begun, Kate Lynch, Jane M Andrews, Susan J Connor​
  8. Corticosteroid and opiate use in inflammatory bowel disease, 25 years after the TREAT registry was established
    Brigid Pinnuck, Wai Kin Su, Bill Wilson, Joseph Pipicella, Gabrielle Wark, Michele Arcidiacono, Gareth Walker, Angela Forbes, Heidi Su, Michael Schultz, Ian Lawrance, Shoma Dutt, Laurel Brett, Susan J Connor, Kate Lynch, Jane M Andrews
  9. Iron deficiency, with or without anaemia, in inflammatory bowel disease remains an undermanaged issue: Crohn's Colitis Cure Data Insights Program
    Brigid Pinnuck, Wai Kin Su, Bill Wilson, Joseph Pipicella, Watson Ng, Sally Antoniades, Gareth Walker, Angela Forbes, Shoma Dutt, Kate Lynch, Susan J Connor, Jane M Andrews
  10. Patterns and predictors of steroid use in people with IBD in routine care across ANZ
    Consuela Rivas, Wai Kin Su, Bill Wilson, Watson Ng, Simon Ghaly, Gareth Walker, Angela Forbes, Heidi Su, Michael Schultz, Ian Lawrance, Shoma Dutt, Laurel Brett, Jakob Begun, Kate Lynch, Jane M Andrews, Susan J Connor
  11. Factors associated with inflammatoy bowel disease (IBD) helpline (HL) utilisation: Crohn's Colitis Cure Data Insight's Program
    Chloe Davidson, Wai Kin Su, Bill Wilson, Consuela Rivas, Sally Antoniades, Gabrielle Wark, Heidi Su, Simon Ghaly, Rachel Grafton, Jane M Andrews, Susan J Connor​
  12. Inflammatory bowel disease helpline use amongst the culturally and linguistically diverse population, Crohn's Colitis Cure Data Insight's Program
    Aura Cabaero, Wai Kin Su, Bill Wilson, Consuela Rivas, Sally Antoniades, Watson Ng, Angela Forbes, Kristen Arnold, Rachel Grafton, Jane M Andrews, Susan J Connor​
  13. Mortality and comorbidities in people with inflammatory bowel disease - Crohn's Colitis Cure Data Insight's program
    Owen Alsulaibi, Wai Kin Su, Bill Wilson, Letisia Sin, Waton Ng, Gareth Walker, Angela Forbes, Ian Lawrance, Kate Lynch, Jakob Begun, Susan J Connor, Jane M Andrews
  14. Active perianal fistulising Crohn's Disease is associated with a higher burden of psychological distress, depression, anxiety, stress and opioid use
    Bonita Gu, Wai Kin Su, Dominique Nano, Bill Wilson, Sabina Iliescu, Kate Lynch, Jane M Andrews, Susan J Connor, Simon Ghaly​
Digestive Disease Week (DDW)
  1. Patterns and predictors of steroid use in people with IBD in routine care across ANZ
    Consuelo Rivas, Wai Kin Su, Bill Wilson, Watson Ng, Simon Ghaly, Gareth Walker, Angela Forbes, Heidi Su, Michael Shultz, Ian Lawrance, Shoma Dutt, Jakob Begun, Kate Lynch, Jane M Andrews, Susan J Connor
  2. Corticosteroid and opiate use in inflammatory bowel disease, 25 years after the TREAT registry was established.
    Brigid Pinnuck, Wai Kin Su, Bill Wilson, Joseph L Pipicella, Gabrielle Wark, Michele Arcidiacono, Gareth Walker, Angela Forbes, Heidi Su, Michael Shultz, Ian Lawrance, Shoma Dutt, Laurel Brett, Susan J Connor, Kate Lynch, Jane M Andrews
  3. Iron deficiency, with or without anaemia, in inflammatory bowel disease remains an undermanaged issue: Crohn's Colitis Cure Data Insights Program
    Brigid Pinnuck, Wai Kin Su, Bill Wilson, Joseph L Pipicella, Sally Antoniades, Gareth Walker, Angela Forbes, Shoma Dutt, Kate Lynch, Susan J Connor, Jane M Andrews
  4. Active perianal fistulising Crohn's Disease is associated with a higher burden of psychological distress, depression, anxiety, stress and opioid use
    Bonita Gu, Wai Kin Su, Dominique Nano, Sabina Iliescu, Kate Lynch, Jane M Andrews, Susan J Connor, Simon Ghaly
  5. Consistency and Quality of Inflammatory Bowel Disease care in Australasia; towards benchmarking, Crohn's Colitis Cure Data Insight's Program
    Wai Kin Su, Jack McNamara, Bill Wilson, Gabrielle Wark, Kate Lynch, Heidi Su, Angela Forbes, Ian Lawrance, Yoon-Kyo An, Shoma Dutt, Laurel Brett, Gareth Walker, Jane M Andrews, Susan J Connor, Simon Ghaly
Australian Gastroenterology Week (AGW)
  1. Divided by distance: Insights into regional disparities in inflammatory bowel disease care across Australia from the Crohn’s Colitis Care Registry (DISTINGUISHED POSTER AWARD)
    Rodger Wu, Victor Caquilpan, Bill Wilson, Jane M Andrews, Susan J Connor
  2. CCCare: A Clinician-Led, People-Centric Model for Scalable Data-Driven Improvement in IBD Care
    Bill Petch*, David Carter*, Susan J Connor, Jane M Andrews, Richard Gearry, Alissa Walsh, Ian Lawrance, Chrissie Whitfield
  3. Colectomy Trends in Ulcerative Colitis Amidst an Expanding Therapeutic Landscape: Insights from a Clinical Care Registry
    Tracey Liu, Rodger Wu, Bill Wilson, Victor Caquilpan, Susan J Connor, Jane M Andrews
  4. Crohn’s Colitis Cure: Building a Consumer Co-Care App – Methodology & Consumer Insights
    Patrick Chan, Susan J Connor, Simon Knowles, Jane M Andrews
  5. Correlation between abbreviated and full clinical inflammatory bowel disease severity scores for clinical practice
    Wai Kin Su, Susan J Connor, Jane M Andrews, Bill Wilson
  6. Inflammatory bowel disease and obesity in Australia: the size of the problem
    Patricia Kaazan, Warren Seow, Bill Wilson, Gareth Walker, Michael Schultz, Ian Lawrance, Jakob Begun, Susan J Connor, Jane M Andrews
  7. Longitudinal trends in benchmarking performance in IBD care amongst Australasian centres: A real-world registry study from the Crohn’s Colitis Cure Data Insights Program
    Rodger Wu, Wai Kin Su, Bill Wilson, Victor Caquilpan, Jane M Andrews, Susan J Connor, Simon Ghaly
  8. Factors associated with Inflammatory Bowel Disease (IBD) helpline (HL) utilisation and differences between CALD and EFL people: Crohn’s Colitis Cure Data Insights Program‍
    Chloe-Elise Davidson, Aura Cabaero, Consuelo Rivas, Wai Kin Su, William Wilkinson, Sally Antoniades, Watson Ng, Angela Forbes, Kirsten Arnold, Rachel Grafton, Gabrielle Wark, Heidi Su, Simon Ghaly, Jane M Andrews, Susan J Connor
  9. ‍Older-onset IBD: how are we managing this specialty cohort in Australasia? – a CCCare Data Insights Program‍
    Crystal Seng, Rodger Wu, Bill Wilson, Susan J Connor, Jane M Andrews, Gareth Walker
  10. ‍Real-world patterns in the route of administration of infliximab and vedolizumab for inflammatory bowel disease – Clinician inertia?‍
    Rodger Wu, Wai Kin Su, Bill Wilson, Susan J Connor, Jane M Andrews
  11. ‍Real-world persistence of advanced therapies in Crohn’s disease: insights from the Crohn’s Colitis Care Registry and comparison with the Persistence Australia National Inflammatory Bowel Disease Cohort registry‍
    Rodger Wu, Wai Kin Su, Bill Wilson, Renée Deschenes, Susan J Connor, Jane M Andrews
  12. ‍Real-world trends in infliximab use and route switching in inflammatory bowel disease in Australia from 2021 to 2024: Insights from Crohn’s Colitis Cure Data Insights Program
    ‍    Rodger Wu, Bill Wilson, Victor Caquilpan, Susan J Connor, Jane M Andrews
  13. ‍The likely return on investment from broad implementation of an inflammatory bowel disease-specific clinical quality registry – towards sustainable inflammatory bowel disease care‍
    Rodger Wu*, Bill Petch*, Renée Deschenes, Susan J Connor, Jane M Andrews
  14. ‍The Promise of Digital Health? Scoping the Digital Desert in Australian IBD Care‍
    Patrick Chan, Rodger Wu, Jane M Andrews, Susan J Connor
  15. ‍‍Timing and predictors of bowel resection in a large Crohn's disease cohort: Insights from the Crohn’s Colitis Cure Data Insights Program.‍
    Maddeson Riley, Rodger Wu, Victor Caquilpan, Jane M Andrews, Susan J Connor
  16. ‍Tracking transition: Early real-world observations following implementation of Crohn’s Colitis Care’s paediatric registry platform‍
    Renée Deschenes*, Rodger Wu*, Bill Wilson, Victor Caquilpan, Susan J Connor, Jane M Andrews, Shoma Dutt
  17. ‍Use of Steroids in a Real-world Inflammatory Bowel Disease Cohort‍
    Consuelo Rivas, Rodger Wu, Renée Deschenes, Wai Kin Su, Bill Wilson, Joseph L Pipicella, Watson Ng, Simon Ghaly, Gareth Walker, Angela Forbes, Heidi Su, Michael Schultz, Ian Lawrance, Shoma Dutt, Laurel Brett, Jakob Begun, Kate Lynch, Jane M Andrews, Susan J Connor
2024
Congress of European Crohn's and Colitis Organisation (ECCO)
  1. Fistulising Crohn's Disease in a large Australasian cohort - Crohn's Colitis Cure (CCC) Data Insights Program
    Jack McNamara, Bill Wilson, Joseph Pipicella, Simon Ghaly, Richard Gearry, Jakob Begun, Watson Ng, Kate Lynch, Ian Lawrance, Michael Shultz, Gareth Walker, Graham Radford-Smith, Jane M Andrews, Susan J Connor
  2. The burden of mental health disease in people with inflammatory bowel disease - Crohn's Colitis Cure (CCC) Data Insights Program
    Jack McNamara, Bill Wilson, Joseph Pipicella, Simon Ghaly, Richard Gearry, Astrid-Jane Williams, Kate Lynch, Ian Lawrance, Michaeal Shultz, Gareth Walker, Graham Radford-Smith, Susan J Connor, Jane M Andrews
  3. Variation of outcomes in inflammatory bowel disease at ten Australasian centres - Crohn's Colitis Cure (CCC) Data Insights Program
    Jack McNamara, Bill Wilson, Joseph Pipicella, Simon Ghaly, Richard Gearry, Jakob Begun, Watson Ng, Kate Lynch, Ian Lawrance, Michael Schultz, Gareth Walker, Graham Radford-Smith, Jane M Andrews, Susan J Connor
  4. Dose escalated Ustekinumab in Inflammatory Bowel Disease - Crohn's Colitis Cure (CCC) Data Insights Program
    Meghan Barnett, Jack McNamara, Bill Wilson, Joseph Pipicella, Simon Ghaly, Richard Gearry, Jakob Begun, Astrid-Jane Williams, Kate Lynch, Ian Lawrance, Michael Schultz, Gareth Walker, Graham Radford-Smith, Susan J Connor, Jane M Andrews
  5. Dose escalated vedolizumab in Inflammatory Bowel Disease - Crohn's Colitis Cure (CCC) Data Insights Program
    Jack McNamara, Basheer Alshiwanna, Bill Wilson, Joseph Pipicella, Simon Ghaly, Richard Gearry, Jakob Begun, Watson Ng, Kate Lynch, Ian Lawrance, Michael Schultz, Gareth Walker, Graham Radford-Smith, Jane M Andrews, Susan J Connor
  6. Dose escalated Infliximab in Inflammatory Bowel Disease - Crohn's Colitis Cure (CCC) Data Insights Program
    Basheer Alshiwanna, Jack McNamara, Bill Wilson, Joseph Pipicella, Simon Ghaly, Richard Gearry, Jakob Begun, Astrid-Jane Williams, Kate Lynch, Ian Lawrance, Michael Schultz, Gareth Walker, Graham Radford-Smith, Susan J Connor, Jane M Andrews
  7. Inflammatory Bowel Disease helpline contact trends in a real-world Australasian cohort: Crohn’s Colitis Cure (CCC) data insight’s program
    Joseph Pipicella, Bill Wilson, Simon Ghaly, Sally Antoniades, Kate Lynch, Rachel Grafton, Watson Ng, Alexandra Sechi, K Somes, Kristen Arnold, Susan J Connor, Jane M Andrews
  8. Assessing patient-perceived burden of disease in Crohn’s disease: a novel scoring approach in a real-world Australasian cohort
    Joseph Pipicella, Bonita Gu, Lyle Palmer, Susan J Connor, Bill Wilson, Jane M Andrews
  9. Assessing patient-perceived burden of disease in Ulcerative Colitis: a novel scoring approach in a real-world Australasian cohort
    Bonita Gu, Joseph Pipicella, Lyle Palmer, Susan J Connor, Bill Wilson, Jane M Andrews
  10. The real-world use of five-aminosalicylate (5ASA) treatment for Ulcerative Colitis in Australia and New Zealand: Crohn’s Colitis Cure (CCC) data insight’s program
    Joseph Pipicella, Jack McNamara, Bill Wilson, Kate Lynch, Gareth Walker, Jakob Begun, Ian Lawrance, Simon Ghaly, Graham Radford-Smith, Astrid-Jane Williams, Richard Gearry, Michael Schultz, Laurel Brett, Jane M Andrews, Susan J Connor
  11. A glance into paediatric Inflammatory Bowel Disease in Australasia – Crohn’s Colitis Cure (CCC) data insights program
    Joseph Pipicella, Shoma Dutt, Edward Giles, A S Day, Robert Wright, T Goodfellow, Bill Wilson, Jane M Andrews, Susan J Connor
Digestive Disease Week (DDW)
  1. The Burden of Mental Health Disease in People with Inflammatory Bowel Disease - Crohn's Colitis Cure (CCC) Data Insights Program
    Jack McNamara, Bill Wilson, Joseph Pipicella, Simon Ghaly, Richard Gearry, Astrid-Jane Williams, Kate Lynch, Ian Lawrance, Michael Schultz, Gareth Walker, Graham Radford-Smith, Susan J Connor, Jane M Andrews
  2. Assessing Patient-Perceived Burden Of Disease In Ulcerative colitis: A Novel Scoring Approach In A Real-World Australasian Cohort​
    Bonita Gu, Joseph Pipicella, Lyle Palmer, Susan J Connor, Bill Wilson, Jane M Andrews
  3. Assessing Patient-Perceived Burden Of Disease In Crohn’s Disease: A Novel Scoring Approach In A Real-World Australasian Cohort​
    Joseph Pipicella, Bonita Gu, Lyle Palmer, Susan J Connor, Bill Wilson, Jane M Andrews
  4. Real-World Use of Five-Aminosalicylate (5ASA) Treatment for Ulcerative Colitis in Australia & New Zealand: Crohn’s Colitis Cure (CCC) Data Insight’s Program​
    Jane Pipicella, Jack McNamara, Bill Wilson, Kate Lynch, Gareth Walker, Jakob Begun, Ian Lawrance, Simon Ghaly, Graham Radford-Smith, Astrid-Jane Williams, Richard Gearry, Michael Schultz, Laurel Brett, Jane M Andrews, Susan J Connor
  5. Dose escalated vedolizumab in Inflammatory Bowel Disease - Crohn’s Colitis Cure (CCC) Data Insights Program
    Jack McNamara, Basheer Alshiwanna, Bill Wilson, Joseph Pipicella, Simon Ghaly, Richard Gearry, Jakob Begun, Watson Ng, Kate Lynch, Ian Lawrance, Michael Schultz, Gareth Walker, Graham Radford-Smith, Jane M Andrews, Susan J Connor​​
  6. Dose escalated Ustekinumab in Inflammatory Bowel Disease - Crohn's Colitis Cure (CCC) Data Insights Program​
    Megan Barnett, Jack McNamara, Bill Wilson, Joseph Pipicella, Simon Ghaly, Richard Gearry, Jakob Begun, Astrid-Jane Williams, Kate Lynch, Ian Lawrance, Michael Schultz, Gareth Walker, Graham Radford-Smith, Susan J Connor, Jane M Andrews​
  7. Dose escalated Infliximab in Inflammatory Bowel Disease - Crohn's Colitis Cure (CCC) Data Insights Program​
    Basheer Alshiwanna, Jack McNamara, Bill Wilson, Joseph Pipicella, Simon Ghaly, Richard Gearry, Jakob Begun, Astrid-Jane Williams, Kate Lynch, Ian Lawrance, Michael Schultz, Gareth Walker, Graham Radford-Smith, Susan J Connor, Jane M Andrews​
  8. Variation in Outcomes in Inflammatory Bowel Disease at 10 Australasian Centres - Crohn's Colitis Cure (CCC) Data Insights Program
    Jack McNamara, Simon Ghaly, Joseph Pipicella, Bill Wilson, T Goodfellow, Madiha Cheema, Kate Lynch, Astrid-Jane Williams, Jakob Begun, Richard Gearry, Andrew Kim, Craig Haifer, Angela Forbes, Ian Lawrance, Michael Schultz, Gareth Walker, Graham Radford-Smith, Jane M Andrews, Susan J Connor​
Australian Gastroenterology Week (AGW)
  1. The real-world use of five aminosalicylate treatment for ulcerative colitis – Crohn’s Colitis Cure Data Insight’s Program​
    Wai Kin Su, Bill Wilson, Joseph Pipicella, Craig Haifer, Kate Lynch, Angela Forbes, Gareth Walker, Michael Schultz, Ian Lawrance, Yoon-Kyo An, Laurel Brett, Susan J Connor, Jane M Andrews
  2. Healthcare Utilisation in people with inflammatory bowel disease – Crohn’s Colitis Cure (CCC) Data Insights Program​
    Wai Kin Su, Joseph Pipicella, Bill Wilson, Andrew Kim, Chloe Davison, Edward Giles, Gareth Walker, Angela Forbes, Heidi Su, Ian Lawrance, Shoma Dutt, Kate Lynch, Laurel Brett, Jakob Begun, Susan J Connor, Jane M Andrews​
  3. The burden of mental health issues in people with inflammatory bowel disease in Australasia: Crohn’s Colitis Cure (CCC) data insights program
    Taryn Lores, Sabina Iliescu, Wai Kin Su, Bill Wilson, Kirsty Leray, Gordana Kuzet, Kate Lynch, Jane M Andrews, Susan J Connor
  4. A cross section of inflammatory bowel disease management in older persons in Australasia: Crohn’s Colitis Cure (CCC) data insights program
    Crystal Seng, Wai Kin Su, Bill Wilson, Craig Haifer, Astrid-Jane Williams, Angela Forbes, Ian Lawrance, Kate Lynch, Laurel Brett, Jakob Begun, Susan J Connor, Jane M Andrews, Gareth Walker​
  5. Inflammatory bowel disease nurse helpline contact trends in a large real-world Australasian cohort: Crohn’s Colitis Cure (CCC) data insights programTitle
    Wai Kin Su, Patrick Chan, Joseph Pipicella, Bill Wilson, Sally Antoniades, Aura Cabaero, Angela Forbes, Kirsten Arnold, Rachel Grafton, Jane M Andrews, Susan J Connor​
  6. Comparing Real-World Use of Dietary & Medical Therapies in Children & Adults with IBD: A Cross-Sectional Study Using Data from the Crohn’s Colitis Care (CCCare) Clinical Quality Registry​
    Joseph Pipicella, Wai Kin Su, Bill Wilson, Jane M Andrews, Susan J Connor
  7. The prevalence and impact of obesity in an ANZ cohort of people with inflammatory bowel disease: Crohn’s Colitis Cure (CCC) data insights program
    Patricia Kaazan, Wai Kin Su, Bill Wilson, Elaine Dinoy, Gabrielle Wark, Gareth Walker, Angela Forbes, Michael Schultz, Jia Yap, Chris Rayner, Ian Lawrance, Shoma Dutt, Kate Lynch, Laurel Brett, Jakob Begun, Jane M Andrews, Susan J Connor
  8. Dose escalated therapy improving outcomes in inflammatory bowel disease – Crohn’s Colitis Cure (CCC) Data Insights Program​
    Wai Kin Su, Bill Wilson, Watson Ng, Clair Whittaker, Edward Giles, Gareth Walker, Angela Forbes, Ian Lawrance, Shoma Dutt, Kate Lynch, Laurel Brett, Yoon-Kyo An, Susan J Connor, Jane M Andrews​
  9. The psycho-social impact of fistulising perianal Crohn’s disease in Australasia: Crohn’s Colitis Cure (CCC) data insights program
    Dominique Nano, Wai Kin Su, Jack McNamara, William Wilson, Arteen Arzivian, Astrid-Jane Williams, Gareth Walker, Angela Forbes, Heidi Su, Edward Giles, Ian Lawrance, Shoma Dutt, Kate Lynch, Laurel Brett, Jakob Begun, Jane M Andrews, Susan J Connor
  10. Iron deficiency with or without anaemia continues to be an issue in inflammatory bowel disease – Crohn’s Colitis Cure (CCC) data insight’s program​
    Brigid Pinnuck, Wai Kin Su, Bill Wilson, Joseph Pipicella, Watson Ng, Sally Antoniades, Gareth Walker, Angela Forbes, Shoma Dutt, Kate Lynch, Susan J Connor, Jane M Andrews
  11. Documented variation in inflammatory bowel disease care in Australasia – Crohn’s Colitis Cure (CCC) Data Insights Program​
    Wai Kin Su, Jack McNamara, Joseph Pipicella, Bill Wilson, Simon Ghaly, Aura Cabaero, Gareth Walker, Angela Forbes, Heidi Su, Laurel Brett, Shoma Dutt, Yoon-Kyo An, Ian Lawrance, Kate Lynch, Jane M Andrews, Susan J Connor
  12. Mortality in Inflammatory Bowel Disease – Crohn’s Colitis Cure (CCC) Data Insights Program
    Owen Alsulaibi, Wai Kin Su, Bill Wilson, Hiu Ching Letisia Sin, Watson Ng, Gareth Walker, Angela Forbes, Ian Lawrance, Kate Lynch, Jakob Begun, Susan J Connor, Jane M Andrews
  13. Exploring a novel score to assess the Patient Perceived Burden of Disease in Crohn’s Disease and Ulcerative Colitis – Crohn’s Colitis Cure (CCC) Data Insights Program​
    Wai Kin Su, Bonita Gu, Joseph Pipicella, Bill Wilson, Andrew Kim, Gabrielle Wark, Edward Giles, Gareth Walker, Angela Forbes, Heidi Su, Shoma Dutt, Yoon-Kyo An, Ian Lawrance, Kate Lynch, Susan J Connor, Jane M Andrews​
  14. Corticosteroid and opiate use in inflammatory bowel disease, 25 years after the TREAT Registry was established
    Brigid Pinnuck, Wai Kin Su, Bill Wilson, Joseph Pipicella, Gabrielle Wark, Michele Arcidiacono, Gareth Walker, Angela Forbes, Heidi Su, Michael Schultz, Ian Lawrance, Shoma Dutt, Laurel Brett, Kate Lynch, Jane M Andrews, Susan J Connor​
Conflict of Interest (COI) Declarations

Name

Declaration

Date

Owen Alsulaibi

None

2025

Jane M Andrews

COI Declaration for ECCO 2025: Speaker‘s fees, research support, Ad Boards, industry consultation within last 3 years: Abbvie, BMS, Celgene, Celltrion, Falk, Ferring, Fresenius Kabi, Gilead,  Janssen, J&J, MSD/Organon, Nestle, Novartis, Pfizer, Sandoz, Shire, Takeda, Vifor, Royal Adelaide Hospital Research Fund, The Hospital Research Fund 2020-2025, The Helmsley Trust 2020-2026.

2025

Sally Antoniades

None

2025

Kristen Arnold

None

2025

Meghan Barnett

None

2025

Jakob Begun

I have received honoraria or consulting fees from Abbvie, Janssen, Takeda, Pfizer, Ferring, Bristol Myers Squibb, Gilead, Tillott’s, Sandoz, Celltrion, Chiesi, Dr Falk, Microba, Glaxo Smith Klein, Antara, Suono, Therpeutic Guidelines, Research Review,Grants: NHMRC, US Department of Defence, The Gutsy Foundation, The Gastroenterological Society of Australia, The University of Queensland, The Viertel Foundation, and The Mater Foundation

2025

Laurel Brett

None

2025

Aura Cabaero

None

2025

Susan J Connor

Ad Boards: Abbvie, Amgen, BMS, Celltrion, Eli Lilly, Ferring, GSK, Janssen, Organon, Pfizer, TakedaSpeaker Fees: Cornerstones Health, Dr Falk, Ferring, Janssen, Sandoz, Sydney IBD School, TakedaEducational Support: DrFalk, Sandoz, TakedaResearch Support: Abbvie, Agency for Clinical Innovation, Amgen, BMS, Chiesi, Celltrion, DrFalk, Ferring, Janssen, Medical Research Future Fund, Pfizer, South Western Sydney Local Health District, Sydney Partnership for Health, Research and Enterprise, Takeda and The Leona M and Harry B Helmsley Charitable Trust

2025

Chloe Davidson

None

2025

Shoma Dutt

Advisory committee member and conference sponsorship: Dr Falk Pharma Australia Pty Ltd, Ferring Pharmaceuticals Pty LtdAdvisory committee member: Abbvie

2025

Angela Forbes

None

2025

Simon Ghaly

Simon Ghaly has received speaker fees, research grants and travel grants from Dr. Falk pharma, Janssen, Pfizer, Abbvie, Sandoz, and Ferring and served on advisory boards for Pfizer and Abbvie.

2025

Edward Giles

Speaker Fees: Takeda, Janssen, Nutricia, Aspen Nutritionals, Abbvie, Evolution HealthConsultancy Fees: Abbvie, Janssen

2025

Rachel Grafton

None

2025

Sabina Iliescu

None

2025

Andrew Kim

None

2025

Yoon-Kyo An

Yoon-Kyo An has received consulting and speaker fees from AbbVie, Allimentiv, Bristol Myers Squibb, Eli Lilly, Dr Falk, Ferring, Glaxo-Smith Kline, Janssen, Pfizer, Samsung, Sandoz, Shire, and Takeda Pharmaceuticals; advisory board fees from AbbVie, Bristol Myers Squibb, Chiesi, Janssen, Microba, NPS Medicine Wise, the Council of Therapeutic Advisory Group (CATAG), Takeda Pharmaceuticals and Xencor; and research and educational support from AbbVie, Bristol Myers Squibb, Cannon, Celltrion, Chiesi, Dr Falk, Ferring, Janssen, Pfizer, Samsung, Sandoz, Siemen, and Takeda Pharmaceuticals.

2025

Ian Lawrance

None

2025

Kate Lynch

Kate Lynch has received speaker honoraria, advisory board fees, and/or conferencetravel/registration support from AbbVie, Bristol-Myers Squibb (BMS), Chiesi, Dr. Falk,Ferring, Gilead, Guidepoint, Intercept Pharmaceuticals, Janssen-Cilag, Merck Sharp &Dohme (MSD), Norgine, Pfizer, Pliant, Sandoz, Takeda, and the Royal Adelaide Hospital(RAH) Research Fund.

2025

Jack McNamara

None

2025

Dominique Nano

None

2025

Watson Ng

Educational and research funding from Jansen, Abbvie, Ferring, Takeda, Pfizer

2025

Brigid Pinnuck

Conference travel/registration from Gilead, MSD, Johnson & Johnson and Abbvie

2025

Joseph Pipicilla

Conference Sponsorship: Dr Falk Pharma Australia Pty Ltd, Ferring Pharmaceuticals Pty LtdCCCure Head of Operations & Company Secretary at the time of research and analysis

2025

Consuelo Rivas

None

2025

Michael Schultz

None

2025

Crystal Seng

None

2025

Letisia Sin

None

2025

Heidi Su

Advisory Board: Janssen, TakedaSpeaker Fees: Janssen, Takeda, Glaxo Smith Kline (GSK)

2025

Gareth Walker

G.W. has received speaker fees, educational support, advisory boards and research grants from Dr Falk Pharma, Janssen, Takeda, Ferring, Celltrion, Sandoz and Abbvie

2025

Gabrielle Wark

Conference travel/registration support from Dr Falk

2025

Bill Wilson

None

2025

Connected circles horizontal

Research Collaborators

  • Dr Owen Alsulaibi
  • Dr Yoon-Kyo An
  • Sally Antoniades, RN
  • Kristen Arnold, RN
  • Dr Meghan Barnett
  • A/Prof Jakob Begun
  • Laurel Brett, RN
  • Aura Cabaero, MN
  • David Carter, BSocSci
  • Dr Patrick Chan
  • Chloe Davidson, RN
  • Dr Shoma Dutt
  • Angela Forbes, MPH
  • Prof Richard Gearry
  • Dr Mark Ghali
  • Dr Simon Ghaly
  • A/Prof Edward Giles
  • Rachel Grafton, Dip A/Sc
  • Dr Bonita Gu
  • Sabina Iliescu, MPsych
  • Dr Patricia Kaazan
  • Dr Andrew Kim
  • Prof Ian Lawrance
  • Taryn Lores, MPsych
  • A/Prof Kate Lynch
  • Dr Jack McNamara
  • A/Prof Greg Moore
  • Dr Dominique Nano
  • Dr Watson Ng
  • Prof Lyle Palmer
  • Dr Brigid Pinnuck
  • A/Prof Graham Radford-Smith
  • Consuelo Rivas, BN, MSc
  • Prof Michael Schultz
  • Dr Crystal Seng
  • Dr Letisia Sin
  • Dr Wai Kin Su
  • A/Prof Gareth Walker
  • Dr Alissa Walsh
  • Dr Gabrielle Wark
  • Dr Bill Wilson

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