Research and Reports

Articles

Reports

Crohn’s Colitis Care (CCCare): bespoke cloud-based clinical management software for inflammatory bowel disease

Krishnaprasad et al.

“Initial evaluation demonstrates CCCare is usable, secure, and valued in clinical use. It is designed to measure outcomes of clinical care, including efficacy, quality, cost, and complications for individuals, and to audit these at hospital and national level.”

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Assessing effectiveness and patient perceptions of a novel electronic medical record for the management of IBD

Kaazan et al.

“CCCare is effective in supporting more complete IBD-specific data capture compared with usual medical records. It is highly acceptable to patients, especially those with reasonable IT literacy. Patient concerns about privacy and security of electronic medical records (EMRs) did not significantly affect acceptability.”

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Novel IBD specific electronic medical record allows scalable auditing of IBD severity, therapy and complications to show the current unmet need in IBD care

Barnes et al.

“CCCare can be used to examine concordance between patients’ and doctors’ judgements of disease activity. CCCare will also enable quality data on extraintestinal manifestations to be reported for incidence and prevalence and better inform their relationship to disease activity and response to various therapies in large cohorts.”

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Integration of mental health and quality of life screening tools in an IBD-specific electronic medical record (Crohn Colitis Care): process and early outcomes

Lores et al.

“Integrating brief screening questionnaires into clinical management software enables proactive screening
for psychological distress and impaired QoL in people
with IBD.”

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The Evolving Role of Technology in Delivering Patientcentric, Empowered Health Care in Inflammatory Bowel Disease: Patient Experience Using Crohn’s Colitis Care e-Health Consumer Platform

McNamara et al.

“This highlights the importance of technology
in facilitating communication and willingness of patient
consumers to use technology as part of their health care delivery when invited to do so.”

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Abstracts

Assessing effectiveness and patient perceptions of a novel EMR for the management of IBD

Kaazan et al.

Journal of Gastroenterology and Hepatology 35 (Suppl. 1) (2020) pp.112

Australian Gastroenterology Week 2020

Novel inflammatory bowel disease-specific electronic medical record allows scalable auditing of disease severity, therapy, complications, and the unmet need in care

Barnes et al.

Journal of Gastroenterology and Hepatology 36 (Suppl. 3) (2021) pp.106-107

Australian Gastroenterology Week 2021

Using a Consensus-Based Method to Develop a Novel Paediatric-Specific IBD eHealth Clinical Management System

Pipicella et al.

Journal of Gastroenterology and Hepatology 36 (Suppl. 3) (2021) pp.91–132

Australian Gastroenterology Week 2021

Using a Consensus-Based Method to Develop a Novel Paediatric-Specific IBD eHealth Clinical Management System

Pipicella et al.

Gut 70 (Suppl 2) (2021) pp. A109-A109

International Digestive Disease Forum 2021

Designing an eHealth clinical management system for young people with IBD: Consensus opinion on topics for inclusion by patients, parents and clinicians.

Pipicella et al.

Journal of Gastroenterology and Hepatology 37 (Suppl. 1) (2022) pp. 224

Australian Gastroenterology Week 2022

What do young people with inflammatory bowel disease, their parents/carers and clinicians value for inclusion in a disease-specific electronic medical record?

Pipicella et al.

Pediatric Gastroenterology, Hepatology & Nutrition 3 (Suppl. 1) (2022) pp. 145-146

6th International Symposium on Paediatric Inflammatory Bowel Disease 2022

Inflammatory Bowel Disease In Canterbury, New Zealand – Descriptive epidemiology Using Crohn’s Colitis Care

Forbes et al.

Gastroenterology and Hepatology From Bed to Bench 16 (Suppl. 1) (2023) pp. S28-S29

New Zealand Society of Gastroenterology Annual Scientific Meeting 2022

Ensuring an eHealth system is suitable for young people with inflammatory bowel disease: clinician, patient and parent topics for inclusion

Pipicella et al.

Gastroenterology and Hepatology From Bed to Bench 16 (Suppl. 1) (2023) pp. S21-S22

New Zealand Society of Gastroenterology Annual Scientific Meeting 2022

Quality, safety and equity of care outcomes for inflammatory bowel disease patients at four tertiary referral centres in Australia using a cloud based management system Crohn’s Colitis Care (CCCare): A real world observational study.

Cheema et al.

Journal of Crohn’s and Colitis 17 (Suppl. 1) (2023) pp.i650-i651

18th Congress of ECCO

Real World, National Experience of Escalated Dosing Of Adalimumab in People With Inflammatory Bowel Disease

McGrory et al.

Gastroenterology (2023)

Digestive Diseases Week 2023

Quality, Safety And Equity Of Care Outcomes For Inflammatory Bowel Disease Patients At Four Australian Tertiary Referral Centres Using The Cloud-Based Management System Crohn's Colitis Care (CCCare): A Real World Observational Study

Cheema et al.

Gastroenterology (2023)

Digestive Diseases Week 2023

Disease and treatment factors influencing outcomes in fistulising Crohn’s Disease

McNamara et al.

Gut (2023)

International Digestive Disease Forum 2023

The evolving role of technology in delivering patient-centric care in inflammatory bowel disease – an Australasian experience using Crohn’s Colitis Care E-health patient portal

McNamara et al.

Gut. (2023)

International Digestive Disease Forum 2023

Variation in Outcomes in Inflammatory Bowel Disease at ten Australian and New Zealand centres – Crohn’s Colitis Cure (CCC) Data Insights Program

McNamara et al.

J Gastroenterol Hepatol. (2023)