Research and Reports

Krishnaprasad et al. 

“Initial evaluation demonstrates CCCare is usable, secure, and valued in clinical use. It is designed to measure outcomes of clinical care, including efficacy, quality, cost, and complications for individuals, and to audit these at hospital and national level.”

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Kaazan et al. 

“CCCare is effective in supporting more complete IBD-specific data capture compared with usual medical records. It is highly acceptable to patients, especially those with reasonable IT literacy. Patient concerns about privacy and security of electronic medical records (EMRs) did not significantly affect acceptability.”

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Barnes et al. 

“CCCare can be used to examine concordance between patients’ and doctors’ judgements of disease activity. CCCare will also enable quality data on extraintestinal manifestations to be reported for incidence and prevalence and better inform their relationship to disease activity and response to various therapies in large cohorts.”

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Lores et al. 

“Integrating brief screening questionnaires into clinical management software enables proactive screening
for psychological distress and impaired QoL in people
with IBD.”

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McNamara et al. 

“This highlights the importance of technology
in facilitating communication and willingness of patient
consumers to use technology as part of their health care delivery when invited to do so.” 

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Pipicella et al. 

“…widespread consumer co-design and consultation ensure vital functionality is not missed, resulting in a product meeting the needs of all consumers.”

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